My daughter posted this on Facebook yesterday:
Looks like surgery is in my near future. My cardiologist is trying to make a case to get me in on a clinical trial to do a clip..which is much less invasive and recovery is much swifter...but only lasts up to 36 mos. But they need to address some other issues first. Prayers for swift answers.
Yes, heart surgery.
My beautiful young daughter needs heart surgery.
She has Mytral valve prolapse with regurgitation, an unfortunately very rare condition in someone as young as she. 1/4 of the blood being pumped is leaking out of the valve and not going where it's supposed to go. This condition was discovered as the doctors were looking for other things.
In speaking with several people the Mytral Valve Prolapse is fairly common and is most often discovered as hers was - looking for something else. Most people don't need surgery, but unfortunately with all the other complicating factors my daughter does.
In the meantime, to receive the clinical trial she has to go through some rigorous tests and check points before a case can be made for this surgery. Her cardiologist said it could take up to 3 months. Hence the prayers for swift answers. If she doesn't get the clinical trial, she will have the standard open-heart surgery where the valve is replaced. All fairly routine by doctor's standards but terrifying if it happens to be YOU.
So once again, life is sort of in the On Hold phase. Plans can be made, but I'm aware of the fact I may need to jump on a plane to be with my daughter once we get answers. Once again, all I want is for her to be OK. Nothing else matters. I want her to be able to go back and live a full, normal HEALTHY life. Why does this simple request seem to be so hard? I find myself being jealous of people talking about their children and their daily goings-on. I so wish I could be in the same position. It is true - when you have your health, you have everything. Please, if your life is just plain old normal, fall on your knees and give thanks to God.
For me, I am shaken to my core. I will take a deep breath and go about my daily tasks as we await the outcome of these tests and what is to be done next. I am anxious to some day plan a trip to California for a happy reason. I want to smile and laugh and not have to worry. I will look on the positive side that this all will come to be, and soon.
That's all I can do, for now.
And if you're reading this, please send positive thoughts and prayers for a return to normal for my daughter.
Tricks by any other name
10 years ago

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